Skip to main content

Ostriches and Arthurs.

Why does it?

 I like many other people work everyday in pain, I try desperately hard to try to not show it, nothing will keep me from doing what I love and  honestly do believe that working hard and doing what I do makes me a healthier person..  I'm STRONGER than my new friend Arthur! Here's part of my story.

I've had a painful shoulder on and off for about 10 years, getting worse then improving to a point I could almost forget about it. Over the years I had numerous diagnosis's for it, but they were never correct, trapped nerve, costochondritis (18 months and it will be better) to name but a few, but they never really fit. After a particularly painful episode I ended up at the physio in Ashby in tears asking for help, I couldn't even change gear in my car! he wrote to the GP asking for a referral, they took xrays and finally 4 years ago they diagnosed Osteoarthritis in my sternoclavicular joint (the end of the collarbone closest to the breast bone). I've had numerous injections into the joint, but the best thing I have found is Acupuncture.

I asked the consultant whether other pain in my body would be the same thing, so he sent me for more tests, I have subsequently 2 years later been diagnosed with degenerative discs in my neck and Psoriatic Arthritis in my feet and knees, this is a form of arthritis related to psoriasis, currently my most painful area is my left foot! once I've sat down for a while walking on it is extremely painful,  I look ridiculous when getting out of the car after a long day! hobble hobble.

I'm 36 years old, arthritis is something my gran would have, not me, I'm young, I work really really hard. I love my job and thankfully I actually feel worse if I'm not working, this is because it keeps me moving.

On to my husband, where do I start, I don't think he gets it, he grew up with a father that had terrible arthritis in his knees, so you'd think he'd understand how I feel a little....... errr no. I try not to say what hurts to much, its always there to some extend somewhere in my body so going on about it isn't going to change it, but sometimes he needs to know I'm not fine, but when I say "blimey my feet are hurting tonight" or my shoulder his reply is always "why does it"..... I think he is an ostrich with his  head in the sand.

Maybe its because he doesn't like to think of me hurting, so he shuts it out, or he's just so wrapped up in his work he genuinely forgets...or maybe he thinks I'm to young for arthritis, who knows. I LOVE my husband to the moon a back, one day I believe he will understand even if its not now.










Comments

  1. I understand this totally. Keep on swimming tho! Well not if it hurts of course ;) my official diagnosis : myofascial trigger point syndrome. My interpretation? Oh bugger shoulder n k knee hurt!

    ReplyDelete

Post a Comment

Popular posts from this blog

Autism, ASD, Asperger

You know
My daughter.  13years old and Perfect. 
Quirky, beautiful, caring, loyal, nervous, friendly, lonely, loving, unusual, thoughtful. PERFECT. 
I've always described my daughter as quirky, or her actions as a lizzisms. 
The start of our journey. Lizzi had some unusual behaviour at infant school,  when she was about 5 years old, she rocked constantly on her chair "went off into her special place" unfortunately we didn't have a very knowledgeable teacher, she wanted to refer to camhs but made it sound as though we were in trouble, and to be honest we panicked. She said some things that shocked me and we moved her school.

Fast forward a few years to the last year of primary school where Lizzi anxieties started to manifest, particularly with bus journeys.  The first major problem was the school residential trip which she was really looking forward to. But a few days before she started getting very upset about the upcoming bus ride.  A few children had mentioned to …

Changes Galore

Our continued journey 
After our psychiatric  appointment I was feeling quite positive things were moving forward and we were getting answers. I thought we'd get the support at school we needed but that wasn't to be the case, our psychiatrist wanted the school to refer her for cognitive psychometric testing however funding was an issue. So Dr Balal referred her himself.  
School This coincided with a particularly touch time at school, there was a number of bullying instances before half term with a few different children and I felt Lizzi was retreating into herself, she was quiet, more anxious, more highly strung and I was worried.  After half term I struggled again with getting her into school. 
We had been thinking of moving her to  Manor House School  for her GCSEs, an independent private school where their ethos is 'unlocking potential.  My husband my sister and I talked to Lizzi about the possibility of moving schools for this, she was so cross! I believe this was do…

It's been a while

Life Blimey!!! So it's been a while since I wrote on my blog, to be honest it's been a time full of highs and lows, I've kept thinking I must write but just haven't been able too. There has been lovely family meals and a great family and friends Christmas. There has been holidays,  fun days, dog days and downright tricky days. 
My beautiful daughter is quirky in the most glorious way. We've been referred to camhs for her as they're questioning high functioning autism (formally Aspergers), she certainly has some key behaviours, whether it is that or not, we need at times a little support and understanding with her. Academically she's absolutely fine, but social she's a few years behind, and sometimes that can cause issues.  We are currently 22weeks on a waiting list to see the correct department and they've said I could be another 30!  My advice is if you have any concern with your children push for help early!  
As a family we've had many issue…